I decided today as I sat at home fighting the stress and the emotions and feeling alone that I am going to start to write it all down, get all the thoughts & feelings out...well, as much as I am personally comfortable with.
Anyone who knows me knows that I may be quiet at first but after that I wear my heart on my sleeve & pretty much open up and tell you almost anything thats going on in my life. (Much to my husbands dismay, he is the very COMPLETE opposite. My husband keeps it ALL in wrapped up, tucked away & locked with a key)
We seem to be in a cycle of "hmm, he is a rare case" or "interesting" when it comes to finding out what is going on with our little guy. We have seen more doctors of different trades for months now and do not feel much closer to an answer now than I did when I started bringing him to the doctor when he was just over a month old and insisting he was having allergic reactions and being told he was not. After a couple month "Ok, maybe he is" See allergist .. this baby is HIGHLY allergic. Seems he is highly allergic to a lot, BUT what? Little guy does not want to give his blood for whatever reason (another thing I would be concerned with is I was his doctor but maybe they'll wait until our 5th attempt to finally have the red flag raised, Like Hmmmmmm they can get in the vein but can't get blood..WHY???) Now here were are just a about a week away from 8 months old with no answers yet. I have watched my babys skin be clear, have mild eczema & severe eczema.. we have seen his little face covered in blood. We have watched him scratch (of course we try to stop him) and scratch like no matter how much he tries to help the itch it does not feel better. I can not help but to think, if he was one of their children (by their I mean one of the many doctors we have seen) they would find out what the hell is going on. Not just say Hmm, interesting, lets wait a month and see how he does, maybe these "food sensitivities" will lessen.He is my sweet, precious baby boy, my God can some one please help him already? Can someone go above and beyond and help me help him? We cant do this by ourselves.
I do not love the medical world right now. Every time my baby boy is at his worse I can not help but to think, why is he still going through this?
I know life could be worse & I know we could be dealing with worse but I don't even know what we are dealing with.
We have an appointment in a couple weeks with a specialist & pray that we leave there with some answers.
